The initiative captures information on patients diagnosed with respiratory illness or SARS-CoV-2, providing details on demographics, comorbidity and treatment. Data is collected from 40 sites participating in PCORnet, the National Patient-Centered Clinical Research Network.
- Develop partnership between CDC, PCORnet and PHII for COVID-19 surveillance using data from electronic health records
- Maintain and update a filtered common data model of patients with respiratory illnesses and SARS-CoV-2 testing every two weeks
- Respond to queries every two weeks to assess patients with COVID-19 diagnoses, influenza diagnoses and SARS-CoV-2 testing
- Respond to advanced analytic queries focused on predictors of admission/readmission, disease severity and COVID-19 sequelae
key partners and roles
- The Centers for Disease Control and Prevention (CDC) serves as the project sponsor.
- PHII, a program of the Task Force for Global Health, provides project management, contract management and communications support.
- Harvard Pilgrim Health Care (HPHC) serves as the data coordinating center and leads development, execution and generation of surveillance queries. HPHC also captures data for advanced analytics.
- Louisiana Public Health Institute (LPHI) provides strategic direction and support for the initiative and contributes data for surveillance queries.
- This initiative has been a unique partnership that has supported efforts within CDC and the federal government to respond to the pandemic and has led to published manuscripts and presentations, all while serving as the catalyst for other related projects exploring COVID-19.
- More on the impact of this project can be viewed within the impact statement.
The November webinar began with a welcome that highlighted how PCORnet data have been used previously and the potential questions the data can answer in the future. This was a perfect segue into the official launch of the impact statement, a recommendation from prior webinars. This resource highlights the impact PCORnet data have had on understanding COVID-19 epidemiology and informing public health policy and action to help manage the pandemic. Please feel free to distribute this resource widely. Other topics of discussion included 2022’s remaining queries and potential query topics for 2023. Attendees were also given a first look at the updated COVID-19 surveillance data, and findings and trends from the first Monkeypox assessment.
The August webinar included potential topics for Year 3 queries, preliminary data on therapeutics and Monkeypox additions to the next cumulative query. All sites should have received their contract for this funding cycle, which began on August 1, 2022. Additionally, the PCORnet team discussed the creation of an impact statement, a recommendation from prior webinars, that will describe how data from this project has been used beyond publications and will share with sites once it is available.
The June webinar provided a high-level overview of work completed to date, past queries, future cumulative queries and some key outcomes, including some newly released tables displaying sequelae severity among different age groups across the PCORnet sites. Additionally, the webinar included logistical updates as Year 2 closes and Year 3 begins along with potential topics for queries in Year 3.
The May webinar provided a high-level overview of work completed to date, past queries, future cumulative queries and some key outcomes. The webinar also looked forward to expected funding for Year 3 and the continuing engagement of PCORnet sites.
The December webinar covered updates on the long COVID, immunization, death and disease severity queries. Additional topics include an update on the short-term approach for patient-level data, potential queries for 2022 and an update on the progress of manuscripts submitted for publication.
June’s webinar provided an update on current and future queries, manuscripts and other publications under developement and details for the scope for the second year of the project.
*Note: The June webinar recording and transcript contain data that have not been shared publicly. Once that data has been made public, the webinar and transcript will be made available.
The query schedule for year 3 is to be determined.