Newborn Dried Bloodspot Screening Business Process Analysis; Report of the NDBS Workgroup

Successful newborn dried bloodspot screening (NDBS) systems rely on effective partnerships to ensure that there is appropriate screening, diagnosis, and follow-up. Coordinating care across multiple settings and service providers, ensuring continuity of care over time, and generating new knowledge about heritable disorders requires information systems that can fully support the process. Developing such information systems requires a clear understanding of the NDBS system and documentation of the roles and responsibilities for all involved. Business Process Analysis can help achieve that outcome. This report describes the Newborn Dried Bloodspot Screening (NDBS) Business Process Analysis in the context of the output of NDBS Workgroup, convened in 2008 by the Public Health Informatics Institute under the aegis of the Maternal and Child Health Bureau, Health Resources and Services Administration and the Southeastern Newborn Screening and Genetics Collaborative. The components and activities of the entire (NDBS) process are described as the basis for defining requirements for information systems to support the process.

This work is supported by PHII in partnership with the Health Resources and Services Administration, Maternal and Child Health Bureau (HRSA/MCHB) and the Genetics and Newborn Screening Region 3 Collaborative (Region 3).